Dec 31, 2010
Dec 23, 2010
Dec 15, 2010
Dec 11, 2010
Dec 7, 2010
Dec 6, 2010
Dec 2, 2010
- Please help me find out what's wrong with me. I miss being able to work, study and rock climb. I miss going out with friends for dinner and drinks on Friday nights. I miss my old life. Something happened between then and now - help me find out what happened.
- Please don't tell me that I need to learn to live with my symptoms. I am doing my best to cope, but until you can tell me what's wrong with me, I don't want to believe I will feel this way forever.
- Please don't get annoyed that I ask for copies of my lab reports and ask you questions about flagged lab values. I am a curious person, desperate to find an answer. To you these questions are an annoyance, for me - this is my life slipping away.
- Please don't patronize me. If you have something to say, please say it to me in person - not in your follow up report to my PCP.
Nov 26, 2010
Nov 21, 2010
Nov 19, 2010
Nov 12, 2010
Nov 9, 2010
Nov 7, 2010
Oct 27, 2010
Oct 20, 2010
Oct 19, 2010
Oct 16, 2010
Oct 13, 2010
Sep 21, 2010
Sep 18, 2010
Sep 17, 2010
Patients with a history of emotional disturbances, especially the depressive type, may be more prone to have a recurrence of depression while using MIRENA. In cases of a serious recurrence, consideration should be given to removing MIRENA, since the depression may be drug-related. (Mirena Product Monograph, p.9)
Sep 9, 2010
Sep 6, 2010
Sep 3, 2010
Aug 22, 2010
Apr 15, 2010
The other day I realized that about 20 minutes before the start of my headaches, I get a hard to describe "prickly", "pins and needles", "electric" kind of feeling from my occipital area around to my eyes.
I suppose I always thought that this was actually the headache (as it is uncomfortable), but I've recently learned that if I can throw enough medication at it while I'm in this "prickly" phase, I can prevent it from getting worse.
Does anyone else get "aura" that isn't visual?
Apr 14, 2010
Dr. Kumagai is the director of an innovative program for first-year medical students called the "Family Centred Experience", where students are matched for a year with families dealing with chronic illness.
At the end of the year, the students create some form of artistic representation of the illness experience.
Please take a moment to listen to this mp3. I wish I could give proper credits, but was only able to find it listed as: Ben, Heiko, and Cailin
The song is about migraine experience, it left me in tears. These students are amazing.
mp3 Performance of "Lullaby", scroll down page to see
Apr 8, 2010
Mar 20, 2010
Two weeks ago, I lost a dear member of my family. That day came too soon for us. What started out as a simple bladder infection turned to sepsis in a matter of hours.
When it was clear that her situation had become grave, the staff in the ER could not have been more wonderful. They helped us through the difficult decision to withdraw treatment and move to palliative care.
The doctors, nurses, social workers, chaplain, housekeeping staff - were all kind and attentive. It was a busy night in the ER with patients stacked in the hallways; and yet they managed to give us private space to be with her while she passed. They brought us juice and crackers. They walked us through every stage of her death.
When the Canadian system functions well, it is a thing of beauty to witness.
Mar 15, 2010
"I think that our working relationships [Between ICU doctors and nurses - ETA] are very forward—we are all part of the team—if the doctor isn’t there it fails, and if the nurse isn’t there, it fails. . . . I think we (doctors) lead the team by involvement and motivation.
Feb 7, 2010
Feb 2, 2010
After contacting some friends who would know more than I do about this, I am feeling somewhat assured that Mr. Picard may have overstated the problem. Still, there is a problem.
This really shouldn't be happening at all. While some might argue that the consent implicit, I would certainly like to be explicitly informed if there is going to be a student prodding around in my parts. If it were explicitly stated, I would give consent - I suspect many women would.
There is one way to clear all of this up: just ask.
Feb 1, 2010
I appreciate that you are filling in for my regular family physician. I understand that you probably do things a little differently than she does; but your practice leaves a few things to be desired.
Despite that you have all of my medical records electronically, I didn't make a big deal over filling out all of your paperwork, with medical history, medications and allergies. If I'm willing to go along with writing all of this down for you, the least you could do is read it. Especially the part where I wrote - "Allergies: I had a rash while taking Doxycyline." Yes, a rash. Some skin redness.
I made myself comfortable and was pleasant while your nurse took my blood pressure. Unfortunately, she refused to share it with me, saying, "the doctor doesn't allow us to share test results with patients." When I raised this with you, you told me that patients aren't sophisticated enough to understand these confusing numbers. (It's only blood pressure for Gawd's sake!) Or, worse, they might want to have a conversation about it!
You walked into the room and stated your name and stared at me. Was that an introduction? Next time you might want to try a greeting, such as "Good morning, my name is______".
I realize that you don't know my medical history, but could you please try take my word for it when I tell you that I use a saline nasal rinse every day. And yes, I do know what saline is.
And finally, when you asked me if anything seems to help my sinus pain, and I told you that a Tylenol-based decongestant seemed to improve symptoms, perhaps lecturing me about the lack of efficacy of these products ("No, that wouldn't have helped, studies have shown that these don't work) was a little uncalled for?
Thank you for your time, I hope not to see you again.
(am I being too harsh?)
Jan 31, 2010
After months of feeling great, the past few days I am like a zombie. I could close my eyes and fall asleep at just about any time. The past few days I had to lie down and take a nap mid-day (about 2 hours) because if I didn't, I was going to fall asleep standing up. It is like a bloody sleep attack.
I'm sleeping well at night, using my "happy light" in the mornings, taking my Synthroid, iron & B12 supplements. I just hate this feeling. I'm all stuffy and congested and sleepy.
The good news is that despite this little setback, my mood is still really good. My thinking is still clear and I'm not in any pain. But yeah, sleep is delaying my life...I wish I could just get up.
Jan 26, 2010
Primary Care Physician:
1. Patient books appointment with family doctor to discuss weight gain, heart palpitations & fatigue.
2. Doctor orders TSH test
3. Doctor tells patient that their TSH is within the "normal range" of 0.5 - 5.0 (no mention that TSH has changed from 1.9 to 4.8 since last test
Opinion: advises another TSH test in three months to monitor.
Cranky Internal Medicine Specialist:
1. Meet with patient, treat with skepticism.
2. Decide that a patient with a diagnosis of depression cannot have anything else wrong with them.
3. Note that lab results of TSH at 6.2 are "slightly elevated", but no cause for concern.
Opinion: Patient has history of depression. Depression causes fatigue and weight gain. Refer back to referring psychiatrist.
Private Health Care Physician:
1. Patient presents with weight gain, relentless fatigue, feels lousy.
2. Doctor orders TSH test.
3. Doctor notes that TSH is 8.3
Opinion: Notes that new TSH range is 0.3 to 3.0 - treat immediately, ideal is to be as close to 1.0 as possible
1. Reviews lab results from Private Doctor
2. Disagrees with the new TSH reference range, but notes that people with depression seem particularly sensitive to thyroid fluctuations.
Opinion: Treat - but not as aggressively as suggested by Private Physician.
Much Nicer Internal Medicine Specialist
1. Reviews previous lab tests.
2. Asks why previous Internist didn't treat thyroid.
3. Suggests that reference ranges are not particularly meaningful, and that one should treat the patient, not the lab result.
Opinion: Thyroid fluctuation could have been my issue long before my TSH started to change. Thyroid is under-diagnosed. Treat aggressively.
Five doctors, four perspectives, two reference ranges, two "wait & see", three "treat", two "aggressively", one "conservatively".
This just shouldn't have been so difficult.
Jan 23, 2010
- The frustrated patient fighting an invisible illness?
- The PhD student who studies politics and power in the Canadian health system?
- Or perhaps the voice of the 'former-health-system-administrator' would come through?