tag:blogger.com,1999:blog-2359682211073924503.post6101371656649908663..comments2023-10-08T04:23:53.073-07:00Comments on Brain Fog: What the bleep is wrong with me?!?Penelopehttp://www.blogger.com/profile/11092060348938570183noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-2359682211073924503.post-88252528732032621262012-10-20T03:59:42.919-07:002012-10-20T03:59:42.919-07:00definitely appears autoimune since the ANA is high...definitely appears autoimune since the ANA is high, symptoms question now becomes which one/ones :( there are over 100 AI diseases out therw and often when a person has one, they have at least one other which ends up confusing the doctors with conflicting symptoms. <br />:( <br />this link will most definitely help in many ways:<br /><br />http://www.womenshealth.gov/publications/our-publications/fact-sheet/autoimmune-diseases.cfm<br /><br /><br />I still don't understand the difference, I mean if your autoimmune response is out of whack, should be one or two "basic" ways to a road back to living. Unfortunately not so for everyone-I'm 6 years into this crap and no end in sight. I woke up this and yesterday morning as if a semi had run me over, backed up and did it again...and that's with 24/7 pain control. All I can say that may be any use to you is demand a visit to a neurologist (I still haven't gotten this), more important a rhuematologist (extremely helpful!). be sure you and your doc have a great relationship and if its a big practice-be sure that you can request him/her every time you visit, as this saves mix ups and repeating every thing before you get to the day's symptoms that are bothring you.<br /><br /><br />good luck and I wish you the energy and the pain free day you deserve!<br /><br />jennJewel Reedhttps://www.blogger.com/profile/02951308227269799196noreply@blogger.comtag:blogger.com,1999:blog-2359682211073924503.post-86258574209136189002011-06-23T09:37:15.674-07:002011-06-23T09:37:15.674-07:00Have you ever entertained the idea that you have a...Have you ever entertained the idea that you have an autoimmune disease? There are other foods that are giving you a leaky gut besides gluten and this launches your immune system to attack you. You need to see me.lalahttps://www.blogger.com/profile/09679475619801757600noreply@blogger.comtag:blogger.com,1999:blog-2359682211073924503.post-46371046296494903922011-06-01T19:55:47.143-07:002011-06-01T19:55:47.143-07:00If you've had even one low cortisol test and w...If you've had even one low cortisol test and with your symptoms, I would keep checking. If you get another low, I would be pushing hardcore for an ACTH challenge and ITT test (if it becomes necessary).<br /><br />And talk to some of the adrenal patients here ( http://www.addisonssupport.com/) as they have more expertise than me.<br /><br />MPissed Off Patienthttp://pissedoffpatient.blogspot.com/noreply@blogger.comtag:blogger.com,1999:blog-2359682211073924503.post-57945104493372477312011-06-01T08:59:02.297-07:002011-06-01T08:59:02.297-07:00Headstrong - Thanks for the support. Do any of the...Headstrong - Thanks for the support. Do any of these symptoms sound lupus-like to you? I still haven't found an answer to my high ANA, and it is always in the back of my mind...<br /><br />POP - I've had am cortisol tested twice before, the first was low, the second time was normal. All of the blood work I've had done when I feel crappy is pretty much the same: sort of low ferritin (but not too low), high ANA, nothing ever points to a clear direction. Do you have any ideas of what else I should be tested for?<br /><br />E. Greene - I agree, the back and forth is awful - you get your hopes up and then *boom* another crash.Penelopehttps://www.blogger.com/profile/11092060348938570183noreply@blogger.comtag:blogger.com,1999:blog-2359682211073924503.post-18631267230109611832011-05-31T18:43:47.895-07:002011-05-31T18:43:47.895-07:00I hate all the back and forth, it seems like a tea...I hate all the back and forth, it seems like a tease, sometimes...the sleep, though, always seems to make things a little clearer the next day, for me, anyway.<br /><br />Thinking of you.E. Greenehttps://www.blogger.com/profile/03096269693853951632noreply@blogger.comtag:blogger.com,1999:blog-2359682211073924503.post-21719894046104341582011-05-31T14:58:56.592-07:002011-05-31T14:58:56.592-07:00You have had the am cortisol tested before right? ...You have had the am cortisol tested before right? 'Cause you sound a little like me there. <br /><br />Have your docs run any blood work when you are feeling like this? That might be worth pursing.<br /><br />Hope you feel better soon.<br /><br />MMedical Mojavehttps://www.blogger.com/profile/14445140579589340514noreply@blogger.comtag:blogger.com,1999:blog-2359682211073924503.post-65765735318130666542011-05-31T08:35:47.110-07:002011-05-31T08:35:47.110-07:00How awful! I'm sorry you've hit a rough p...How awful! I'm sorry you've hit a rough patch - I hope it clears up soon, never to return. Sleep well.Headstronghttps://www.blogger.com/profile/08140416504973149357noreply@blogger.com